Rare disease plan to identify and address gaps in services

Vicky McGrath , CEO of Rare Disease Ireland, said while there is a lot more work to do, she is more hopeful than for some time. Picture: Moya Nolan

People with rare diseases in Ireland can take hope from a “groundswell of support” for reform in the health services, Rare Disease Ireland has said.

A new rare disease plan is being developed to identify and address gaps in services.