Young footballer fights burning skin condition to help team to league victory
Sample caption: Although goalie Sophia Dawson (12) has epidermolysis bullosa simplex â a severe form of the incurable genetic skin condition also known as âbutterfly skinâ â and plays with painful blisters on her feet, she was named playersâ player of the year by her Donacarney Celtic Under 12s teammates after she helped her side win the Metropolitan Girls League Division A.
A young footballer from Co Meath has overcome a burning skin condition, which causes painful blisters on her feet, to help her side become league champions.
Sophia Dawson, aged 12, took up football because she wanted to remain active after being forced to leave Irish dancing when classes became too painful.
Sophia was diagnosed with epidermolysis bullosa simplex (EBS) â a severe form of the incurable genetic skin condition also known as âbutterfly skinâ â two months after being born.
Epidermolysis bullosa (EB) is a group of rare diseases that causes blisters, which quickly burst and leave slow-healing wounds.
Despite her condition, she battled through the pain to play every game in goals last season for Donacarney Celtic Under 12s as they finished top of the Metropolitan Girls League Division A.
Sophia has said she will be cheering on Ireland on Monday with parents Aisling and Mark, and little brother Alfie, as the Girls in Green play Nigeria in their last World Cup 2023 fixture.
âI love watching the Womenâs World Cup in Australia this year, and my favourite Ireland player is Katie McCabe,â she said.
The young player said she managed to convince her parents to let her join a team after she enjoyed playing with friends.
âBefore I joined Donacarney, I loved playing football outside with my friends,â she said
âAll of my friends were joining football clubs and I kept asking my parents if I could.
âEventually they gave in and said I could give it a go.â
Sophia supports Manchester United and said her favourite player is Marcus Rashford because of his âability and charity workâ.
She said she managed to play the full season despite the pain in her feet caused by her condition.
âI played one whole football season as a goalkeeper, even though my feet burn, sting and blister after matches,â she said.
âMy parents were incredibly proud of me, because of the ups and downs I went through, and our team even won the league.
Joanna Joyce, head of advocacy at EB charity Debra, said the government could do more to transform the lives of people impacted by EB in Ireland.
âFor the price of two cups of coffee a day, the Government can help to ease the lifelong pain, physical and mental trauma that people with EB endure,â she said.
âIn many cases, EB can be an invisible condition which has a hugely negative impact on peopleâs lives, yet those living with it are still struggling to access vital supports and services.
âAt Debra, we understand EB. We know how difficult this journey can be and that the needs people may have are very particular to them and their situation.â
Deirdre Callis, head of family services at Debra, added the charity helps ease the âunimaginable pressures everyone impacted by EB in Irelandâ lives through.
Sophia said her father also has EBS and her parents knew she had the condition when they found blisters on her feet when she was a baby.
âI wish for one day there to be a cure for all types of EB and with Debraâs support we might get there,â she said.



