Charity call for mental health support for families of children with painful skin condition

Maria Maciukas became the cover star of a book aimed at explaining epidermolysis bullosa to primary school children. Picture: Richard Sheehy

A charity representing 300 people with a fragile skin disorder has called for ringfenced mental health support for sufferers and for parents of young children who “scream in agony for hours”.

Extremely painful blisters develop on the skin and internal lining of the body after even a light touch due to this progressive condition epidermolysis bullosa (EB), also known as Butterfly Skin.