A Roscommon family is appealing to the HSE to give them the home support they need to allow them to care for their four-year-old son.
Liam Hall suffers from a severe neurological disorder and constant seizures.
As today is his fourth birthday, the 12 hours per week homecare that he received from the Jack And Jill Foundation will end.
His mother Áine said that the HSE must aid her family in their hour of need.
"It can't go on, it's not fair, it's people like Liam who are suffering and it's the carers who are suffering," she said.
"The HSE did say last week that they'd keep home care services for those who needed it most, so it's time for them to step up and deliver for Liam.
"He's one who does need it, and we need their support."
Jonathan Irwin, CEO and Founder of Jack & Jill Foundation, voiced his support for the Hall family’s appeal.
"We fully support the Hall family’s appeal to Minister Reilly to step in and address their son Liam’s home care package," he said.
"Unfortunately, this isn’t an isolated case and it’s proving more and more difficult for our nurses to handover the care plans of the children under Jack & Jill’s wing when they reach the age of four years old.
"With 79 of the 300 precious children we support reaching the age of four years old over the next 12 months, it is essential that we have a smoother handover process with the HSE to ensure less stress for families like the Hall’s.
"This culture of cuts in homecare has got to stop, otherwise children like Liam will end up back in hospital unnecessarily and hospital care is nine times more expensive than the Jack & Jill homecare model.
"It’s time to take stock at a national level and address this complete lack of a national paediatric home nursing care budget before the situation gets much worse.
"I would call on Minister Reilly to intervene in the case of Liam Hall and to take the necessary steps to ring fence funds from the existing HSE budget, to ensure families like the Hall’s get adequate support to keep their children at home."