HSE refuses to foot girl’s lifesaving drug bill

A family may have to sell their farm and move to Britain where their teenage girl can receive a lifesaving drug for a rare blood condition.

Maeve McGill, 15, from Aighe, Ardara, Co Donegal, needs a drug which costs €437,000 a year to treat her life-threatening blood disorder, Paroxysmal Nocturnal Haemoglobinuria (PNH), but the HSE is refusing to pay for it.

Her parents, Pat and Teresa, are planning to sell their farm, two miles outside the town which has been in the family for generations, to allow them move to the UK to help their daughter.