Cystic Fibrosis row: ‘Situation at CUH at this stage is so wrong’

Kara and Hugh O’Callaghan were invited out to Christmas dinner but their son’s condition meant they had to take the precaution of having their own fridge stocked as well.

“We’ve had to pull out of so many family occasions because if someone is sick, we can’t risk placing Leon in that environment,” says Kara.

She’s not complaining, just stating the reality of what having a child with cystic fibrosis (CF) is like: It means simple things like playzones are no-go areas and visitors to their home in Clonakilty, Co Cork, must remove their shoes and sanitise their hands.