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A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

Children with cystic fibrosis live longer as treatment advances

Children with cystic fibrosis live longer as treatment advances

Report shows children born with CF between 2016 and 2021 are expected to reach 51.8 years old. Only 60 years ago, most such children died before 12 or 13 years of age

Fri, 31 Mar, 2023

Mother says life is 'just beginning' for daughters given access to CF drug

Mother says life is 'just beginning' for daughters given access to CF drug

On Tuesday, the HSE approved Kaftrio for children aged six to 11 who previously fell outside the eligibility criteria

Fri, 24 Mar, 2023

CF drug delay causing 'unnecessary and irreversible damage'

CF drug delay causing 'unnecessary and irreversible damage'

The mother of a 10-year-old girl denied access to a revolutionary drug for Cystic Fibrosis has called on the health minister to intervene in a dispute between the manufacturer and the HSE.

Wed, 14 Sep, 2022

'It all comes down to money': 35 children in need of CF drug 'left in limbo'

'It all comes down to money': 35 children in need of CF drug 'left in limbo'

Cystic Fibrosis Ireland say the don't have confidence in the NCPE's capacity to judge drug reimbursement for the children

Mon, 11 Jul, 2022