Documentary on Simon Fitzmaurice is a tale of sadness and inspiration

Irish filmmaker Simon Fitzmaurice is in front of the camera at Sundance this weekend for a documentary on how his life has been affected by motor neurone disease, writes Esther McCarthy.

MY Name is Emily saw the extraordinary Simon Fitzmaurice — almost totally incapacitated by motor neurone disease (MND) — directing his first feature film using his eyes.

Now he returns to the big screen as a filmmaker and storyteller, this time in front of the camera.