Beds withdrawal could be fatal for CF children

My son, Rian, was diagnosed with cystic fibrosis when he was 10 months old. He is now three and doing quite well. My knowledge of this illness was minimal, but my family and I have had to learn.

Hospital visits are necessary every couple of months. These fill me with dread, as we have to enter via A & E. This short walk, and the hospital, put my son’s health at risk. Yearly bloods have to be taken in the wards of sick children: try explaining to a three-year-old that they cannot play with the toys.

I cannot praise the cystic fibrosis team highly enough, but I can see, as time is going on, and cut backs are becoming ever more severe, that they are under increasing strain. What does this mean for my son’s future?