Kerry family 'over the moon' as baby Theo in line for multimillion 'miracle drug'

Theo Whelan, who was born last April, is a possible recipient of the 'miracle drug' for the treatment of spinal muscular atrophy

Theo, Shane and Stephanie Whelan at home in Killorglin, Co Kerry.

The family of a child with a rare muscular condition has said they are “over the moon” the HSE has given the approval to reimburse what has been labelled a “miracle drug”.

On Friday, the HSE announced it had approved the gene therapy drug Zolgensma for reimbursement in the treatment of spinal muscular atrophy (SMA) for patients who meet the specified criteria.