'Huge risks' for children with rare diseases in Ireland

(Left to Right) Vicky McGrath CEO Rare Diseases Ireland and Minister for Health Simon Harris. Ms McGrath said services are wholly inadequate. Photo: Gareth Chaney/Collins

There are “huge risks” in the health system for children with rare diseases, the Oireachtas health committee heard on Wednesday.

Two key reports on rare diseases, one costing €86,000 to commission, have been completed but not yet published, the committee also heard.