Respreeza patients have to wait on next dose

Patients in receipt of a drug that slows the progression of genetic emphysema do not know when they will receive their next dose because of confusion over who is to administer the drug.

CSL Behring, the company which manufacturers Respreeza, said it was “anticipated” that the patients’ representative group, the Alpha-1 Foundation, together with the patients’ physician, would put individual arrangements in place so they could continue to receive weekly infusions.

However, the company said yesterday: “We cannot clarify if arrangements are in place yet.”