Family Carers: "Who will look after my daughter when I can't?"

A big worry for Moira Skelly is who will care for her daughter when she falls into bad health or dies.

Ciara, 21, was born with intractable epilepsy and cerebral palsy and was later diagnosed with developmental delay and autism.

“Mentally, Ciara has never developed beyond the age of two so, although she is 21, she is still in nappies and has to be washed, dressed, and fed. Everything has to be done for her,” said Moira.