Mother fighting life-threatening disease seeks public help to secure much needed drug

A man whose wife is fighting an extremely rare, life-threatening disease has appealed to the public to help her secure a drug that could turn her life around.

Mother-of-one Charlotte Connolly, 47, was diagnosed with Systemic Degos disease early last year, after undergoing a barrage of tests over the last four years.

It is a condition where the small blood vessels break down, and Charlotte’s is the only known case in Ireland.