Let me be treated in UK, pleads woman with rare illness

A young woman with a rare and progressive disease who was refused funding to travel abroad for treatment not available here has launched a public appeal calling on the Government and the HSE to relent.

Aimee Foley, 26, from Midleton, Co Cork, who has Ehlers-Danlos syndrome (EDS) — an incurable connective tissue disease that effects the joints, muscles, bones, blood vessels, and organs — has launched a Facebook campaign and a YouTube campaign to highlight her plight. About 7,700 people have shared her video on Facebook.