‘I am very frightened for my son’s future care’

SUCH is the severity of 6-year-old Lorcan Wood Wolfe’s chronic arthritic condition, he must travel fortnightly from West Cork to Dublin for highly specialised drug treatment.

One of seven children in the care of Dr Orla Killeen to be prescribed new drug Toxilizumab, Lorcan must travel every two weeks to Our Lady’s Children’s Hospital, Crumlin for IV infusion.

Door-to-door, the journey is four hours, but because of Lorcan’s condition and stiffness, it is necessary to make at least two stops to allow him to stretch, adding up to two hours to the journey.