‘I am very frightened for my son’s future care’
One of seven children in the care of Dr Orla Killeen to be prescribed new drug Toxilizumab, Lorcan must travel every two weeks to Our Lady’s Children’s Hospital, Crumlin for IV infusion.
Door-to-door, the journey is four hours, but because of Lorcan’s condition and stiffness, it is necessary to make at least two stops to allow him to stretch, adding up to two hours to the journey.