Event: Rare Disease Day

A COMPREHENSIVE SERIES OF ARTICLES ON THIS TOPIC

Working Life: 'Our focus is on working alongside the child and family to identify meaningful goals'

Beth Milofsky, speech and language therapist and founder of SWAN Ireland (Syndromes Without A Name)

Thu, 13 Feb, 2020

Working life: Avril Daly, chair of the Genetic and Rare Disorders Organisation

7am

Sat, 27 Feb, 2016

Lauren’s video role raises awareness of rare diseases

An eight-year-old Irish girl with an uncommon debilitating condition is featured in a Europe-wide promotional video for Rare Disease Day, released today.

Mon, 13 Feb, 2012

Event: Rare Disease Day

Working Life: 'Our focus is on working alongside the child and family to identify meaningful goals'

Working life: Avril Daly, chair of the Genetic and Rare Disorders Organisation

Lauren’s video role raises awareness of rare diseases

Latest

Mick Clifford

Event: Rare Disease Day

Working Life: 'Our focus is on working alongside the child and family to identify meaningful goals'

Working life: Avril Daly, chair of the Genetic and Rare Disorders Organisation

Lauren’s video role raises awareness of rare diseases

Latest

Mick Clifford

Most Read