Event: European Conference on Rare Diseases

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Mother fears delay in rare disease plan

A MOTHER who spent years campaigning for families affected by an uncommon genetic disease is fearful that a two-year deadline for the launch of a national strategy to treat patients with rare diseases will not be met.

Fri, 21 Jan, 2011

One in three sufferers of rare diseases receive wrong diagnosis

ONE third of Irish patients with rare diseases are given a wrong diagnosis and suffer serious unfounded medical interventions such as surgery and medicinal or psychological treatments, a survey has found.

Tue, 21 Jun, 2005

Event: European Conference on Rare Diseases

Mother fears delay in rare disease plan

One in three sufferers of rare diseases receive wrong diagnosis

Latest

Mick Clifford

Event: European Conference on Rare Diseases

Mother fears delay in rare disease plan

One in three sufferers of rare diseases receive wrong diagnosis

Latest

Mick Clifford

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