Meet the babies who blister at a touch

Butterfly Skin is a beautiful name for an horrific disease that can lead to an aggressive cancer. Even a hug can be painful,
reports.THIS,” says Deirdre Callis, bluntly, “is the worst disease you’ve never heard of.” Callis is talking about Butterfly Skin, or epidermolysis bullosa, an excruciatingly painful and distressing condition. It causes the skin and internal body linings to blister and tear at the slightest touch. Patients with a severe form of the condition are susceptible to a very aggressive form of skin cancer, from as early as their teenage years.