'A small piece of strength' stolen from motor neurone disease sufferer every day
Since her husband Simon was diagnosed with the disease in 2008 — he was given just a few years to live — it has progressively attacked his body. Simon, a filmmaker, made his first feature, My Name is Emily, despite no longer being able to move or speak.
A documentary based on his book, It’s Not Yet Dark, is narrated by actor Colin Farrell.
