Skin disease EB is ongoing trial for parents and kids

There’s still no cure for EB (epidermolysis bullosa), writes Helen O’Callaghan.   

WHEN their first child was diagnosed with butterfly skin disease EB (epidermolysis bullosa), doctors told Mark Hyland and wife Geraldine there was a 25% chance any further children they had would also suffer from the condition.

But while Alison, now 13, has the severe form of the painful disease that causes skin layers and internal body linings to blister and wound at the slightest touch, she has a mild manifestation of it.