This woman wants to make memories with her daughter before losing her vision and hearing

Every month, Carol Brill’s vision and hearing fade further. The mother of one tells Helen O’Callaghan why her life has become about trying to cram in as much as possible with her 7-year-old daughter.

Carol Brill is going to buy her daughter’s First Communion dress this year even though Sara, 7, won’t make her Communion until 2016.

The 45-year-old mum is taking a gamble that the child will still fit into the dress next year. Carol has Usher Syndrome type 2, a rare genetic disease causing combined sight and hearing loss. There is currently no treatment or cure. Carol has worn a hearing aid since age four and has gradually been going blind since she was 11.