Sun, 17 May, 2020
Thu, 09 Apr, 2020
Thu, 02 Apr, 2020
Disability charities have raised concerns over decreases in donations and fundraising as the Covid-19 situation continues to escalate .
Mon, 09 Mar, 2020
Pharmaceutical firm Vertex Ireland’s revenues soared last year on the back of the company's deal with the HSE on the groundbreaking blockbuster cystic fibrosis drug Orkambi.
Tue, 09 Jul, 2019
The focus must be on improving rates of family consent when providing an opt-out system of organ donation, the Irish Kidney Association has urged.
Thu, 02 May, 2019
Geraldine Clancy, cystic fibrosis (CF) clinical nurse specialist, paediatrics, Tallaght University Hospital
Fri, 05 Apr, 2019
HE’S a former Olympic boxing gold medal winner, but when it comes to his latest sporting challenge, 51-year-old Michael Carruth says he’s a “raw beginner”.
Sat, 30 Mar, 2019
Dublin City Council has given full planning permission for the three-storey unit that aims to provide 20 patient rooms for 160 adults.
Thu, 28 Mar, 2019
Cystic fibrosis patients and their families are calling on the Government to honour its pledge to give them new hospital facilities, warning that the cost of the project is rising as the delay drags on.
Tue, 19 Mar, 2019
Alice Ward says it's frustrating that health system is not doing all it can to support her when she is doing all she can to beat cystic fibrosis.
Tue, 06 Nov, 2018
Teachers be warned! A West Cork school is making plans for ‘U’.
Fri, 20 Apr, 2018
Cork woman Kate Walsh won’t let cystic fibrosis stop her from living a full and active life, she tells Karen Murray
Mon, 09 Apr, 2018
Health Minister Simon Harris says he will work with Cystic Fibrosis Ireland to establish a dedicated CF inpatient unit at Dublin’s Beaumont Hospital.
Thu, 05 Apr, 2018
Áine Hannafin is a lively seven-year-old girl who will not let anything stand in her way, not even a severe form of cystic fibrosis (CF).
Mon, 26 Mar, 2018
Well-wishers have been sending their thoughts across the Atlantic for cystic fibrosis campaigner Orla Tinsley who had a long-awaited double lung transplant in New York on Wednesday night.
Fri, 22 Dec, 2017
Cystic fibrosis campaigner Jillian McNulty is hopeful, for the first time, that her parents will not have to bury another child — they have already buried two.
Thu, 13 Apr, 2017
Cystic Fibrosis Ireland has welcomed the long-awaited deal completed by the HSE and drug manufacturer Vertex to make a wonder CF drug available.
Wed, 12 Apr, 2017
A deal has been done between the makers of the cystic fibrosis drug Orkambi and two other drugs and the Health Service Executive.
Tue, 11 Apr, 2017
Sat, 08 Apr, 2017
Chef Adrian Martin says that the reason why he’s so skinny is that he cooks everything himself from scratch.
Fri, 07 Apr, 2017
Ireland has the highest levels of Cystic Fibrosis in the world.
Sat, 01 Apr, 2017
Cystic Fibrosis Ireland (CFI) has reiterated its call to Government to swiftly conclude discussions with the manufacturer of a life-changing drug so that more than 500 patients can potentially benefit from the treatment.
Mon, 20 Mar, 2017
More than 1,200 people in Ireland suffer with Cystic Fibrosis, with an Awareness Week being launched today that aims to raise more than €100,000.
Sun, 19 Mar, 2017
Ann Skelly knew from a young age that formal education wasn’t for her.
Fri, 10 Mar, 2017
A father has made an emotional plea outside Leinster House for his little boy to be given a groundbreaking drug to treat cystic fibrosis.
Thu, 02 Mar, 2017
Cystic fibrosis sufferers and supporters will converge on the Dáil today to protest at the delay in striking a deal with the manufacturers of a life-changing drug that treats the underlying cause of the disease.
Wed, 01 Mar, 2017
Tue, 20 Dec, 2016
Fri, 02 Dec, 2016
The manufacturer of a drug aimed at cystic fibrosis sufferers has said it has still not received an update from the HSE over whether or not funding for it will be recommended.
Tue, 29 Nov, 2016
Cystic fibrosis campaigners have expressed dismay and anger after it emerged that a drug labelled a “game-changer” may not be funded by the HSE.
Mon, 28 Nov, 2016
The National Centre for Pharmaeconomics (NCPE) is seeking a five-fold reduction in the cost of the cystic fibrosis (CF) drug Orkambi.
Fri, 03 Jun, 2016
Cystic Fibrosis Ireland has expressed dismay at a recommendation to the HSE that a drug to treat the condition is not “cost-effective”.
Thu, 02 Jun, 2016
10-day fly-drive LA packakge
Sat, 14 May, 2016
A new drug could make a dramatic difference to one patient with cystic fibrosis, writes Ailin Quinlan
Mon, 11 Apr, 2016
The vast majority of Irish people with cystic fibrosis have seen their condition worsen over the past year, a new study shows.
Sat, 09 Apr, 2016
Don’t dash the hope people with cystic fibrosis now have for a better quality of life, Ireland’s newly elected politicians have been urged.
Tue, 22 Mar, 2016
Cystic Fibrosis Ireland (CFI) has come under fire from another CF charity for making public pronouncements about the dire state of paediatric facilities at Cork University Hospital (CUH) while failing to mention that a major upgrade is currently under way.
Mon, 14 Mar, 2016
Sat, 27 Feb, 2016
The Government has been urged to assess a new drug that treats the underlying cause of cystic fibrosis.
Sat, 04 Jul, 2015
7.15am
Sat, 25 Apr, 2015
FORMER Miss Ireland Sarah Morrissey might not have become a model if her mum hadn’t sent a photo of her to Assets Models Agency.
Sat, 18 Apr, 2015
People who seek reduced water charges on health grounds may be asked to provide evidence of their medical needs and could face an audit if their usage is too high.
Thu, 09 Oct, 2014
Ireland’s health system is in crisis and requires immediate surgery, according to a new group undertaking a nationwide campaign demanding that patients have more of a say in the system.
Tue, 16 Sep, 2014
A major treatment breakthrough offers new hope for cystic fibrosis sufferers.
Thu, 26 Jun, 2014
A new centre for cystic fibrosis patients is opening in Drogheda, Co.Louth, today.
Thu, 03 Apr, 2014
RTÉ weather presenter Nuala Carey has endured years of puns about her career, but she is more than happy to join in the fun.
Sun, 23 Mar, 2014
Mon, 20 Jan, 2014
One of the country’s leading campaigners for improved cystic fibrosis services has urged a charity that raised funds for a Cork hospital not to hand over the money until beds are ringfenced for CF patients.
Tue, 14 Jan, 2014
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