The medication is used mostly by children with Spinal Muscular Atrophy (SMA).
Anton Mannering from SMA Ireland was with a number of families who pleaded with politicians to make Spinraza available for around 25 children with the muscle-wasting disease, spinal muscular atrophy.
A mother pleaded with politicians from all parties in the Dáil to fund a potentially life-changing therapy for her young son.
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