Opposition leader Micheál Martin is to request a meeting with Health Minister Simon Harris to determine if any efforts are being made to ensure patients with genetic emphysema can continue to access a vital drug.
Sat, 17 Mar, 2018
John Hannan has been a ‘guinea pig’ for Respreeza for 11 years. Now, due to the reported €84k-a-year cost, he faces losing access to a drug that’s proven a lifesaver. He talks to
Sat, 07 Oct, 2017
The HSE’s drugs group has recommended that the State not reimburse the cost of the only known drug to treat the underlying cause of emphysema. The decision means 21 patients in receipt of Respreeza face no longer having access from the end of this month.
Fri, 17 Feb, 2017