Patients with genetic emphysema, caught up in a standoff over who should pay to administer a vital therapy, mounted a vigil outside HSE HQ yesterday as it met with the drug’s manufacturer.
Patients set to lose access to a drug the State has refused to reimburse have been granted a six-month reprieve as the manufacturer says it will continue to supply it free of charge.
Patients who suffer from a chronic lung condition, Alpha 1, were told last Friday that they will lose access to a vital drug called Respreeza at the end of the month.
“They’ve pulled the plug on us. It’s shattering news.”
Ten years ago, John Hannon could hardly walk from his home to his car. Yesterday he travelled to Dublin to demand that a drug that transformed his life continues to be available.
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Monday, September 28, 2020 - 8:00 PM
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