Watch: Campaign calls for equality for those living with spina bifida and hydrocephalus

A powerful campaign was launched today highlighting the need for equality for those living with spina bifida and/or hydrocephalus.

National charity Spina Bifida Hydrocephalus Ireland (SBHI) launched the film to "highlight the constant fight those living with disabilities and their families have to face every single day.”

“For too long people living with spina bifida and/or hydrocephalus have experienced gross inequality, this has to change,” said SBHI CEO, Tom Scott.

The charity says service users and members of SBHI have to fight for the most basic of services and this campaign has been launched "with the express purpose of educating wider society of the reality of living with a disability in Ireland today."

They say that the 2000 people affected by spina bifida and/or hydrocephalus across the country "are often left wanting for even the most basic supports" such as adequate health care, social care, education support, transport access, suitable accommodation, and mental health services.

Alyssa who features in the campaign and who has spina bifida and hydrocephalus.

SBHI member and ‘A day in my Wheels’ campaigner, Sean O’Kelly believes that there are still many areas of inequality in Ireland for which the fight to address continues.

“We have a lot of discrimination out there, for example: the fact that there are 1200 people under the age of 65 with disabilities living in nursing homes. I am flabbergasted by that and I do not understand the reason why,” said Sean.

“Ireland has signed and ratified the Convention on the Rights of Persons with Disabilities (UNCRPD) but we still need to fight for so much.

"We really need to get our politicians on board to improve services for people with disabilities that is for sure.”

You can find more information on the campaign and how to volunteer for the SBHI here.

Digital Desk

Related Articles

84,000 children and teenagers awaiting dental assessment or treatment, new figures

Fall in number of patients waiting more than 12 hours at A&E in Northern Ireland

5 signs you need to quit caffeine

What to do if someone you’re with is having an asthma attack

More in this Section

Footballer Jay Donnelly’s appeal against indecent image sentence adjourned

'Excruciatingly embarrassing' Garda Commissioner press conference was too long, says former Garda

'Take a day off work or school' to see total eclipse of the Moon, says Astronomy Ireland founder

Standards body to bring in new wiring rules for electricians by end of year


Trend of the week: A salute to simplicity

Louis Vuitton debuted fibre-optic bags and the internet is obsessed

A strange stripe of super-star with daringly uncommercial music

From the Eiffel Tower to the Berlin Wall: The anniversaries to travel for in 2019

More From The Irish Examiner