Lauren’s video role raises awareness of rare diseases

An eight-year-old Irish girl with an uncommon debilitating condition is featured in a Europe-wide promotional video for Rare Disease Day, released today.

Lauren Shaw from Dublin was four when she was diagnosed with Friedreich’s Ataxia but had been showing signs of the disorder from the age of two.

As a toddler she was very unsteady on her feet, could not feed herself and was not reaching milestones expected for her age.